Tuesday, January 1, 2013

The State of Kait

*Sorry for not posting--I've been sick with a stomach bug and am banned from visiting Kaitlyn--and Killian!--at the moment.*

Kaitlyn is pretty much the same--the mucositis continues, now accompanied by a couple of infections resulting from it along with fevers resulting from those.  Sigh...the doctor did say they saw a small bump up in her white blood cells this morning, but tomorrow it will be zero and a couple of days later .01 and it will go back and forth like that for another week or two probably.  We need the cavalry!  C'mon wbc's!

At any rate, the procedure at this point is pretty much to try to alleviate symptoms with Tylenol (for fever), antibiotics (for infections), and narcotics (for pain).  The narcotics keep her in la-la land most of the time, but she's pretty with it when someone is talking directly to her--at least she can talk now where a few days ago her throat and mouth were in way too much pain for that.  The doctors assure us that although this round of chemo is making Kait very sick, they are not seeing anything that they do not expect to see under the circumstances.  There is some comfort in that, although it's tough seeing her go through it.

Casey and I had our consult with the bone marrow transplant people on Friday where we received the official medical recommendation that we not pursue a transplant at this time.  We feel good and happy about this direction and Kaitlyn is happy with it as well, which is, of course, the most important thing.

A lot of people have asked me how Kaitlyn has been doing through everything that has happened to her since the end of October.  The best answer I can give to that is to refer you to this post of one of her recent Facebook statuses.  She said to me once that she didn't really know what people meant when they told her how brave she was being, etc.

This is what they mean, Kait--this is what they mean.

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